Sugar Silos fairy-tale blue for #LightME
A fairytale blue light shines on Halfweg after sunset on May 12. SugarCity lights up blue to call attention to ME. This makes the Sugar Silos part of a worldwide chain of blue buildings and objects; from the Niagara Falls to the Erasmus Bridge.
17 million ME patients globally miss their lives, an estimated number because many patients do not even get a diagnosis of ME or have to wait years for clarity. This is because many doctors and practitioners miss adequate knowledge about Myalgic Encephalomyelitis.
World ME day
A group of ME patients – also known from the #MillionsMissing campaigns – therefore asks for recognition, better training of doctors and more biomedical research on 12 May (World ME Day). With the hope that a healing treatment can be discovered or a method can be developed that improves the quality of life of ME patients. ME is currently one of the diseases with the lowest biomedical research budgets.
The campaign is being conducted under the title #VerlichtME (#EnlightenME). SugarCity is also part of the global chain of blue buildings and objects on 12 May. Luigi Prins, director Cobraspen Group, developer of the SugarCity site; ‘We are happy to contribute to this initiative to let the iconic Silo’s shine blue to demand more attention for ME’. #MEAction.
Why blue? Blue is the color of the ME Awareness ribbon. A call for donation has been linked to the ME initiative. More information can be found on the Facebook pages VerlichtME and MillionsMissingHolland.